From Dr. Mark Yeager, Ph.D., TEAAM Executive Director & Coordinator for the Institute for Disability StudiesI recently was invited to attend an Autism Awareness Summit Event at the White House. This was an unexpected and great honor for me. I must say that I was very impressed with the attention that was given to the discussions that day by staff of President Obama’s administration. Approximately 60 stakeholders from the autism community attended the meeting. These stakeholders included; parents, professionals, organizational leadership and most importantly self-advocates. Of those in attendance about 2/3rds were parents and/or self-advocates. Many of these delegates held dual roles as organizational leaders as well.
The purpose of the meeting was to examine issues related to the Combating Autism Act (CAA). It is up for re-authorization this year. The meeting began with a message from Valerie Jarrett, Senior Advisor and Assistant to the President for Intergovernmental Affairs and Public Engagement. Then the Secretary of Health and Human Services, Kathleen Sebelius, addressed the group giving us our charge for the day. Our purpose was to advise the White House staff of the issues that needed to be improved, added or even deleted from the old language of the CAA in order to move it forward consistent with the temperament of the autism community.
The stakeholder group was then divided into breakout sessions for the areas of Education and Employment, Community-based Services, Research and Innovation and Public Health/ Healthcare. I attended the Education and Employment session and the discussion was robust. Issues discussed were; consistency of IEP forms and implementation, quality indicators for education programs, transition support beginning earlier and lasting longer, post-secondary opportunities and sufficient supports for employment.
After group meetings we were reconvened into a general assembly to hear a report from each group. I am in hopes of soon receiving a full summary from the White House on all points discussed in each group. Once I have this report TEAAM will be sending out a notice so that I can forward the report to anyone that wishes to receive it. My impression was very positive of this meeting. The people that can make decisions and make a different were there. Hopefully this if the first step in moving the CAA forward in a more productive manner.